Olivia Spivack

About

Implementation coordinator and researcher (ERNICA), PhD candidate Implementation science

Erasmus MC · Department of Pediatric Surgery

Employment

• Erasmus MC

Education

Education history is unavailable.

Projects & Funding

Projects & funding information is unavailable.

Publications (14)

• Updated European Reference Network for rare Inherited and Congenital Digestive and Gastrointestinal Anomalies guidelines for the management of rectosigmoid Hirschsprung's disease 2025
  Journal of Pediatric Gastroenterology and Nutrition 2026 DOI: 10.1002/jpn3.70442
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• Fostering continuous quality improvement in a European rare disease network: Where are we now?
  Orphanet Journal of Rare Diseases 2026 DOI: 10.1186/s13023-026-04324-3
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• ERNICA evidence based guideline on omphalocele
  Willemijn F. E. Irvine, Linde Margriet van der Kamp, Olivia K.C. Spivack +29 more
  Orphanet Journal of Rare Diseases 2026 DOI: 10.1186/s13023-026-04293-7
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• Enhancing rare disease guideline development with real-world data: a method evaluation
  BMC Medical Research Methodology 2026 DOI: 10.1186/s12874-026-02802-7
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• Evolving Surgical Practices in Esophageal Atresia: Insights from the EUPSA-ERNICA Survey a Decade After the 2014 Baseline Study
  European Journal of Pediatric Surgery 2026 DOI: 10.1055/a-2793-1101
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• Evaluating the Empowerment Potential of an International Sexual Support Website for Patients with Anorectal Malformations and Hirschsprung Disease, their Parents and Healthcare Providers
  European Journal of Pediatric Surgery 2025 DOI: 10.1055/a-2635-7802
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• Fostering continuous quality improvement in a European rare disease network
  Frontiers in Health Services 2025 DOI: 10.3389/frhs.2025.1609018
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• Supporting the continuous development and use of a patient partnership framework in European rare disease networks (ERNs): a scoping review of frameworks in the scientific literature
  Journal of Community Genetics 2024 DOI: 10.1007/s12687-024-00763-2
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• A Narrative Review of Patient-Reported Outcome Measures and Their Application in Recent Pediatric Surgical Research: Advancing Knowledge and Offering New Perspectives to the Field
  European Journal of Pediatric Surgery 2024 DOI: 10.1055/s-0043-1778108
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• Moving toward the Development and Effective Implementation of High-Quality Guidelines in Pediatric Surgery: A Review of the Literature
  European Journal of Pediatric Surgery 2024 DOI: 10.1055/s-0043-1778020
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• ERN CRANIO patient coverage of craniosynostosis in Europe
  Orphanet Journal of Rare Diseases 2022 DOI: 10.1186/s13023-022-02475-7
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• European Guideline on Craniofacial Microsomia: A Version for Patients and Families
  Journal of Craniofacial Surgery 2022 DOI: 10.1097/scs.0000000000007987
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• 10th European Conference on Rare Diseases & Orphan Products (ECRD 2020)
  Orphanet Journal of Rare Diseases 2020 DOI: 10.1186/s13023-020-01550-1
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• Different kinds of major incident require different mental health responses
  BMJ 2018 DOI: 10.1136/bmj.k1144
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